Endo Violence Collective
Endo Violence Collective
A Less Endo Violent Future: The International Movement to reduce gendered medical violence through art and writing across disciplines. the systemic and structural injustices.
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Includes::
• A unique thank you from Endo Violence Collective.
• unique thank you from Endo Violence Collective.
• Access to a special lecture about the film and endometriosis.
• unique thank you from Endo Violence Collective.
• Access to a special lecture about the film and endometriosis.
• A signed copy of My days of losing words, Rachael Jablo’s photographic monograph about life with chronic illness
• A Digital thank you.
• Access to the film and one of Hystera’s limited edition prints.
• Digital thank you.
• Access to the film and one of Hystera’s limited edition prints.
• A thank you unique art.
• Access to a special lecture about the film and endometriosis.
• A signed copy of My days of losing words, Rachael Jablo’s photographic monograph about life with chronic illness
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ABOUT THE PROJECT
A Less Endo Violent Future: The International Movement to reduce gendered medical violence through art and writing across disciplines. the systemic and structural injustices
Ever heard of endometriosis? Well we hadn’t until we were diagnosed.
Imagine a world where debilitating pain isn't dismissed as 'women's problems'... We're the Endo Violence Collective, and with your help, we're using art to cultivate visibility of gendered medical violence and to fight endometriosis stigmas through visibility.
Endometriosis, a disease affecting at least 190 million globally that can grow anywhere in the body, is often dismissed by centuries-old stigmas on gender, pain, and menstruation. At least 1 in 10 women are affected and an unmeasured number of individuals that are transgender, non-binary, and gender diverse.
Endo Violence refers to a set of beliefs and norms, acts or processes that are harmful or discriminatory towards an individual or group based on their understanding of the intersection of gender with other inequalities/oppressions, (e.g., race, ethnicity, socioeconomic status, age, disability, and immigration status, and many others) (Pawluczuk, 2023).
Endo Violence is deeply connected to racism, classism, colonialism, and ableism. Black women are less likely to be diagnosed with endometriosis.
The Endo Violence Collective, co-founded by Allison Rich and Dr. Alicja Pawluczuk, emerged from a shared commitment to addressing the systemic injustices surrounding endometriosis.
Video
Find our work at www.endoviolence.com
Endoviolence Collective Magazyn #1
Endoviolence Collective Magazyn #2
Endoviolence Collective Magazyn #3
Our goals are to expand our reach by printing and distributing more Magazyn copies globally, deepen our impact by curating diverse narratives, educate and empower by increasing endometriosis and gendered health literacy, and secure compensation for the essential work we do.
The dangerous standards of care are maintained by silo conversations in medical communities away from spaces that inform culture and policy. It’s time to elevate the conversation, away from the invisible digital silos into publications.
Help us decrease violence against people with endometriosis. This disease is more than biomedical. We are using art to build a movement towards visibility. Will you join us?
Our international community believes visibility is essential to reducing the gendered medical violence of endometriosis. We need your help to build our Endo Violence Collective in a meaningful, non-exploitative way.
This is the gendered public health emergency of our time. This is more than a woman’s issue and artists are essential.
“Please excuse any delays to thank you for your generous donation. Our collective operates on Crip Time. As defined by Critical Disability Studies Collective, Crip Time is "a concept arising from disabled experience that addresses the ways that disabled / chronically ill and neurodivergent people experience time (and space) differently than able-bodyminded folk" (2023: n.a.).”
Artists
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Allison Rich
(she / her) is an organizer and artist who translates interdisciplinary ideas with films. She composes fragments of mixed media, centered in the ethos of DIY and ecofeminism, to explore modalities of knowledge sharing. She co-edits Endo Violence Magazyn. Allison’s film about gendered medical equity and endometriosis visibility ‘Not Normal’ combines first person narration, iPhone recordings, paintings, and archive images to form 213 collages. Featured by Period Movement, Women’s Voices Now, and Chroma Art Film Festival Allison Directed the Earth Ethics Institute, co-founded the Environmental Health Network, and Chaired on the Climate Change Commission. She is certified in climate change and health communications from Yale and in Sustainable Development through University of Cambridge. She is from Miami, FL where she organized access to clean water for her community with Erin Brochovich. @endometriosishealthnetwork
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Hystera (Dr Alicja Pawluczuk)
is a multidisciplinary artist and digital inequalities researcher whose practice intertwines art, community engagement, and academia. Her artistic practice explores the interplay between research and creative interventions for social change. By embracing participatory, intersectional, and experimental approaches, she aims to create spaces, communities, and artworks that challenge boundaries and spark meaningful conversations. Her work is grounded in her lived experiences of invisible disability, neurodivergence, and peripheral whiteness as an Eastern European migrant. She currently works as a Research Fellow at Leeds University/ She is a co-founder of Endo Violence Collective and founder Digital Beez. www.alicjapawluczuk.com @hy_stera
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Rachael Jablo
is a chronically ill, queer, Berlin-based American artist and educator who works with storytelling, photography, installation, and collage to discuss issues around illness, the body, grief, and gender. Her work has been seen recently in solo exhibitions at Graz’s Forum Stadtpark, and USC’s Hoyt Gallery, and in group exhibitions at the Torrance Museum in LA, and at the Bakery Art Gallery in Bordeaux. She has been featured in Ever-Emerging Magazine, on WNYC’s The Takeaway, and Slate, and is an active member of the EndoViolence Collective. She published her photographic monograph about chronic migraine, My days of losing words, with Kehrer Verlag in 2013. Her storytelling and collage project, The Hysteria Project, received a Neustart Kultur Grant for Innovative Arts from the German Government in 2021-2022. She is part of the EU-wide #ENDOs art and narrative medicine project running through 2025. She was the keynote speaker at the Endometriosis (R)Evolution narrative medicine conference at the University of Graz, Austria in May 2024.@thehysteriaproject @rljablo
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Angie Mashford-Scott
is the founder of endokind, an Australian counseling practice for those with endometriosis. Since the 18 year delay in getting her diagnosis, Angie has had multiple surgeries and serious post-surgical complications. Following her most recent surgery, she was rushed back into hospital and admitted to the Intensive Care Unit (ICU) with life-threatening sepsis. Like many endo patients, she questioned herself and the severity of her deteriorating condition and delayed going back into hospital, which almost cost her her life. @endokind_AU